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Portrait of a man with morquio syndrome

The theme for Rare Disease Day a few days ago (feb 29) was: Join us in making the voice of rare diseases heard.

In honor of that I wanted to post a few images from a project I started years ago.  The story is of my friend Nick, and inspiring man with Morquio Syndrome who I first met while taking pictures for a pharmaceutical company.  Every year I return to the small town in rural Louisiana to spend the day with his family.  This year I’ve pulled the first few years of images together on my site.

The full story will be a decade in the making.  <the gallery>

 

Portrait of a man with morquio syndrome Man with Morquio Syndrome takes a selfie with his daughterMan with Morquio bikes with his son

 

 

/Kala

This week we completed the framing of the latest Facing Chemo exhibit – Before & After. The show hung this past Wednesday at a corporate event at Genentech. We are looking forward to seeing the show hang again soon.

 

 

 

 

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/Kala

We are back in the studio this week after traveling quite a bit of traveling for BioMarin. At the beginning of this month we took off to the Midwest to photograph a couple of amazing people with the rare disease called MPS-IV. The warm welcome into these people’s homes and spending time getting to know them is something that will stick with us for a while. It was incredibly rewarding to see into their lives and capture them as people, not as patients. Our First stop was Sioux Falls, South Dakota. Upon stepping into the airport we quickly realized that we had arrived at the peak of quail hunting season. We were greeted with a huge sign that read, “Welcome Hunters.” Being immersed in hunting culture from childhood, I had to get a selfie with some orange. blogThe “shoot”went well. We had an amazing crew and walked away with some great images.BioMarin - MPS VI patient - Kendra TITLE

Next Stop: Fort Scott, Kansas. We got to explore acres of farmland and lose a few games of CLUE to our host and his siblings. The Farm was beautiful, we found a rad barn to photograph. It was so inspiring we had to go antiquing after the shoot and picked up a few things for The Ranch. Houser_141106_0116

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Rad Barn: To see more pictures check out the Instagram.Houser_141106_0259

BioMarin - MPS VI patient - HoldenAll in all the Midwest treated us very well. We can’t wait to share from Bob’s recent trip to New York with this project. More to come.

 

Biomedical annual report images for san francisco based company, BioRad.

The goal was to concentrate on the details involved with this biomedical company’s products, in this case these gram stain gels. They wanted the gel in the image, but needed a human presence for the cover. After shooting this scientist pulled back for an inside image featuring the machine the gels develop in (second image), I began to play with this magnifying glass (stole it from the kids that morning). And, we ended up getting the cover from it.

biomedical annual report photograph

biomedical annual report photograph


biomedical annual report photograph

biomedical annual report photograph

We just finished shooting the 2009 BioMarin annual report last month – this is the same company for which I shot the patient in my earlier post.

The lab images were shot using real employees – we’re in the process of editing video that I shot of these scenes as well.

scientist working in a pharmaceutical lab

scientists collaborating in a pharmaceutical lab

Pharmaceutical hardware