The theme for Rare Disease Day a few days ago (feb 29) was: Join us in making the voice of rare diseases heard.
In honor of that I wanted to post a few images from a project I started years ago. The story is of my friend Nick, and inspiring man with Morquio Syndrome who I first met while taking pictures for a pharmaceutical company. Every year I return to the small town in rural Louisiana to spend the day with his family. This year I’ve pulled the first few years of images together on my site.
The full story will be a decade in the making. <the gallery>
This week we completed the framing of the latest Facing Chemo exhibit – Before & After. The show hung this past Wednesday at a corporate event at Genentech. We are looking forward to seeing the show hang again soon.
More diptychs from our Facing Chemo reunion. I think this might be a separate exhibit soon.
We had a moving, inspiring and wonderful picnic Saturday at the ranch for all the people we photographed for Facing Chemo. Amongst the food, and games and a great home-made chicken piñata, I managed to re-photograph everyone.
Here’s the first diptych of the first person I photographed for this project.
studio news\katie . . .
In May we welcomed a number of guests at OMI Gallery who came to hear Bob talk about the Facing Chemo project. We’re honored that a handful of participants came to both listen and take part in the discussion. A special thank you to Ferne, who agreed to have her portrait taken during the event so that Bob could walk attendees through the process, and to Dexter who bravely shared her experience with the group as well.